Ruby Abramow was first diagnosed with a rare head and neck cancer aged nine, before relapsing in 2019, when she was 14. Now 19, she tells us how a new, supportive environment gave her the fresh start she needed to take back control of her disrupted education.
Louise Robinson is a neuro-oncology outreach nurse specialist at East Midlands Children’s and Young Persons’ Integrated Cancer Service. Here, she emphasises the importance of collaboration and explains how a support pathway helps young patients with their education.
Emily Varley, a school special educational needs and disabilities coordinator (SENDCo) based in Leicestershire
Dr. Ren Manias, Consultant Paediatric Oncologist at Southampton General Hospital, explains that while a cancer diagnosis impacts a child's learning, various support options—including hospital schools, home tutoring, and remote learning—are available to help maintain educational continuity and emotional wellbeing during and after treatment.
Diffuse midline glioma is a devastating brain tumour, affecting primarily young children. There’s currently no cure for this disease and treatment options are limited. This is mainly because this type of tumour is well-protected from drugs by the ‘blood-brain barrier’. This barrier physically blocks all medications from entering the brain. Our group has developed new methods of bypassing this barrier using focused ultrasound.
New research into acute myeloid leukaemia (AML) has been funded, thanks to two Children’s Cancer and Leukaemia Group (CCLG) Special Named Funds.
Researching rare cancers can be very difficult, because researchers need lots of data to work on. In atypical teratoid rhabdoid tumours, the latest clinical trial has been vital for new research.
Research projects funded through the CCLG Research Funding Network have contributed to a new tool for neuroblastoma research.
Children’s Cancer and Leukaemia Group (CCLG) has funded four new research projects as part of a brand-new initiative that will help provide researchers in the early stages of their career with vital experience.
