Dr Sarah Evans, Head of Research at CCLG, describes what patient and public involvement (PPI) involves. PPI is about researchers and those who fund research teaming up with people who have personal experience with a health condition. This collaboration helps make sure that research focuses on what really matters to the people it’s meant to help, like patients and their families.
The Ellen MacArthur Cancer Trust (EMCT) takes young people aged eight to 24 years old on free sailing and outdoor adventures to help rebuild their confidence after cancer. Scott Wilson, of the Trust’s communications team, and Rebecca and Simran, two of the young people it’s supported, describe how the trips help bring people with similar experiences together and why that’s important.
Skin cancer (melanoma) in teenagers and young adults (TYA) is on the increase and evidence from young people and their families suggest that they feel isolated, alone and unsupported.
Sophie Hartley was eight years old when diagnosed with bone cancer in 2005. Now 27, she explains how this affected the relationship she has with herself.
The relationship between oncologists and parents of children with cancer can be complex and unique, with each family having differing needs. Dr Ren Manias, Consultant Paediatric Oncologist at Southampton General Hospital and Contact's medical adviser, tells us how open and honest communication between doctors and parents is key to developing trust and understanding, and why this is important.
Penelope Hart-Spencer is a Health Play Specialist at the Proton Beam Therapy Centre at the Christie in Manchester and a member of the CCLG. In this role, she supports children undergoing cancer treatment who require CT/MRI scans, radiotherapy and proton beam therapy treatments, as well as other clinical procedures.
Teens Unite Fighting Cancer brings together teenagers and young adults living with cancer and its lasting effects. Its CEO, Roxanne Lawrance, explains how surrounding yourself with others in a similar situation can often be helpful during cancer and in the years that follow, and how Teens Unite helps young people do this.
Sophie was diagnosed with acute lymphoblastic leukaemia (ALL) in April 2021 at the age of seven. Her mother, Tanya, shares her story.
Today (1 September) marks the beginning of Childhood Cancer Awareness Month (CCAM). This year, in addition to raising awareness of childhood cancer and its signs and symptoms, CCLG is shining a light on research and how, without it, progress in its treatment and care would not be...
